Jeans for Genes

 

Jeans for Genes was initiated in 1994.  The purpose of the campaign is to raise the funds and awareness of children born with genetic diseases and birth defects.  Research is needed to fight the epidemic regarding 1 in 20 children born with significant diseases and birth defects

The 09th August 2020- is Jeans for Genes Day.  As stated on the Jeans for Genes web site- https://www.jeansforgenes.org.au/about-us/what-is-jeans-for-genes

 

Here are a few of the things you have helped Jeans for Genes and Children’s Medical Research Institute to achieve since 1994:

  • Established an ongoing ‘vector’ engineering program that is designing new ways to cure many genetic diseases using gene therapy. Discovered a cure for genetic liver disease, with clinical trials about to begin
  • Partnered with The Children’s Hospital at Westmead on the first-ever gene therapy clinical trial in Australia, which corrected SCIDX1-deficiency (boy in the bubble disease)
  • Found a single genetic defect can cause cleft lip and palate
  • Discovered dozens of genes causing blindness and introduced genetic testing for these and other conditions, so families can be counselled
  • Genetic identification of previously uncharacterised types of aplastic anaemia, which now helps children and teens survive bone marrow transplant to treat the disease
  • Discovered a new class of drugs to treat the 1 in 3 epileptics not helped by current medication (now in pre-clinical trials)
  • Launched a world-first project to revolutionise cancer diagnosis and personalise treatment planning

 

For more information, please visit www.cmri.org.au

 

On the 15th August, the Greek Orthodox Church celebrates the Feast Day of The Assumption of the Theotokos; recognised as one of the greatest, most significant and celebrated days of the Greek Orthodox calendar.  It’s the day Mother Mary- mother of Jesus Christ passed away- however the day commemorates this as the ‘falling asleep’ of the Theotokos.  Hronia Polla to all, who celebrate their Name Days today.   

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